I am saddened that anyone would share this photo in an attempt to defame Dr. Fauci and inappropriately use this photo of my daughter during her illness. Stevens-Johnson Syndrome Foundation addressed this photograph further in a news release that you can read here.
Nevirapine is one of the primary drugs being readied for distribution in Africa. This caption does not state that the clinical trial drugs actually caused this skin condition, only that this skin condition could be caused by such drugs.
Stevens-Johnson Syndrome is a severe allergic reaction to medications, and may be initiated by many medications including the antibiotic trimethoprim-sulfamethoxazole Bactrim or Septra. Two children in the Vera review experienced Stevens Johnson Syndrome.
Neither case occurred during a clinical trial. This clinical drug trial helped treat children who were fighting a disease with a high mortality rate. A news release from the NIH reads:. In , the mortality rate for HIV-infected children and youth younger than 21 years of age in the United States was 7. By , that rate had plummeted to 0.
The mean age at death for HIV-infected youth in the study more than doubled from 8. Although this represents a dramatic improvement in survival, the death rate for children with HIV is approximately 30 times higher than that of similarly aged U. Multi-organ failure and kidney disease are now major causes of death for HIV-infected children and adolescents. Infections also continue to cause deaths in this group of patients. However, the type of infections has changed, from infections traditionally associated with AIDS to infections that are more common in children without HIV infection.
We must now better understand and pursue treatments for children and adolescents to address the other conditions resulting from HIV infection. The report identified such children who participated in 88 clinical trials and observational studies between and While Vera was not able to access state medical records, the group was able to find medical information through child welfare files, review other records and conduct interviews.
While the Vera report was prompted by concerns surrounding the participation of New York City foster children in such trials, the clinical trials did not exclusively enroll foster children, Ross said. Some trials were sponsored by pharmaceutical companies, but more than 80 percent of the children considered in the Vera review participated in trials sponsored by the National Institutes of Health, according to the report. So much more is needed to raise awareness of heart defects in children.
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